✨LENA'S JOURNEY:

Most of you know that getting to where we are today wasn't easy. Lena’s journey with Nephrotic Syndrome began with a long, frustrating road toward a diagnosis. It was a time of a lot of questions and very few answers.

✨THE TURNING POINT:

Everything changed when we met our incredible team at Golisano Children’s Hospital. Her nurses, in particular, have been absolutely instrumental. They don't just provide medical care; they help us navigate EVERYTHING, from the scariest moments to the smallest victories.

✨THE CHAMPION:

Through it all, Lena has been an absolute champ. Living with Nephrotic Syndrome means being incredibly conscientious for a child. Whether it’s assessing her health or talking about her urine every single day, she handles it with more maturity and grace than we ever could have imagined.

✨THE MILESTONE:

We are so proud to share that Lena is nearing 11 MONTHS of remission!

✨THE MISSION:

To celebrate Lena’s strength and give back to the community that supported us, we are officially recruiting for The Kidney Bean Dream Team (Lena’s Version). We are raising funds and awareness for the Nephrotic Syndrome Foundation to help other families navigating this diagnosis.

THE NEPHROTIC SYNDROME FOUNDATION 

Our Mission:  The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.

Background:  Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.

Join Us: Through our patient programs, we are committed to being a light to young warriors, but we need your help. We are a community of young warriors and families facing something we could never have imagined. TOGETHER, we are making an impact. Thank you to all of the beautiful people, businesses and organizations who make this possible. You are changing the world. ❤️

Thank you for choosing to be the light for those battling Nephrotic Syndrome.

Learn more by visiting our website:

www.nephroticsyndromefoundation.org

​**The Nephrotic Syndrome Foundation is a fiscally sponsored project by Social Good Fund, a California non-profit corporation and registered 501(c)(3) organization, Tax ID (EIN) 46-1323531.