A little about Scarlett’s journey: In February of 2022, Scarlett woke up with a swollen face and eyelids almost completely shut. We got her to the pediatrician, who suggested what was later confirmed by a Pediatric Nephrologist when she was diagnosed with Nephrotic Syndrome. We had never heard of it, but thankfully, her doctor gave us a packet of information for the Nephrotic Syndrome Foundation which is based in Danville, CA, where we had just moved three months prior. We had never been so concerned yet so grateful at the same time. The support we have received has come by way of countless conversations with other patient families on similar journeys, patient events like summer camp and baseball games, and the “Backpack of Hope” which includes blankets, cute pillowcases and presents hand selected by our volunteers based on each individual patient and their interests, all designed to help patients like Scarlett be more comfortable during hospital stays. 

We’re still very hopeful that Scarlett will grow out of this by her teenage years, but that is not guaranteed and these special kiddos and their families need all the support they can get so thank you for help. 

Our Mission:  The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.

Background:  Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.

Join Us: Through our patient programs, we are committed to being a light to young warriors, but we need your help. We are a community of young warriors and families facing something we could never have imagined. TOGETHER, we are making an impact. Thank you to all of the beautiful people, businesses and organizations who make this possible. You are changing the world. ❤️

Our Work:  NSF offers eight programs to uphold our mission and support children diagnosed with this disease and their families. Those programs include:

• Backpacks of Hope - A backpack of comfort items and medical supplies provided to newly diagnosed patients or those who have been battling in this fight without support (each valued at over $300).
• Finding Health Series  - An ongoing series offering content, education and wellness segments, sessions and seminars on topics related to the NS journey.
• NSF’s Peer Team -  A group of older teens and young adults with NS who support younger patients in their journey.
• Thermometer Program - A hospital-grade thermometer provided to patient families ($300+ value).
• Camp NSF - An annual camp, 100% free, for patients, siblings & families that takes place in Livermore, CA.
• Direct Patient Grants - Support for costs related to caring for a child with NS.
• Little Angels - An unsolicited care package program for young warriors.
• Podcast -  Inspirational and authentic stories of warriors living with Nephrotic Syndrome.

Thank you for choosing to be the light for those battling Nephrotic Syndrome.

Learn more by visiting our website: www.nephroticsyndromefoundation.org
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​**The Nephrotic Syndrome Foundation is a fiscally sponsored project by Social Good Fund, a California non-profit corporation and registered 501(c)(3) organization, Tax ID (EIN) 46-1323531.