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Share this campaign No thanksNephrotic Syndrome Foundation hasn't added a story.
We are incredibly and deeply saddened by the recent passing of Brad Price.
Brad was a dear friend to many of us at The Nephrotic Syndrome Foundation. He was not only a fellow NS warrior, he was a beacon of encouragement and hope. Brad's involvement and enthusiastic support of NSF's mission goes back to the first days of NSF. Brad was a great voice of encouragement, as well as NSF's very first donation - starting us off as we embarked on establishing an organization to directly serve children battling Nephrotic Syndrome. Brad knew firsthand how tough this journey was and was always eager to extend his own hand in support of others in the battle - especially children. He touched so many lives with his encouragement, as NSF would subsequently go on to touch over 2,000 families annually. More than anything, Brad was an incredible example of living life to it's fullest, despite the cards you are dealt. He took every opportunity to improve himself, support his family and friends, and encourage the very best for (and of) those he knew and loved.
We are beyond grateful to have known Brad and to have had his influence and presence as part of NSF. It has been, and will always be, an honor to share this work and mission with him. We will deeply miss his smile, warmth and genuine love of life. Thank you for honoring him by taking the time to read, learn and support. We know his spirit and compassion will continue to inspire good in the world, and we will continue to do it in his honor.
Thank you for sharing your love of Brad and for your generosity in supporting our work to help families with a child diagnosed with Nephrotic Syndrome.
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Why NSF?
Our Mission: The Nephrotic Syndrome Foundation is a non-profit organization supporting those diagnosed with Nephrotic Syndrome, their families, and the ongoing search for a cure.
Background: Nephrotic Syndrome is a serious and rare auto-immune disease that attacks the kidneys causing them to shut down. There is no known cause or cure. Treatments are extremely limited and consist primarily of steroids and cancer and transplant medications. Many patients are children who spend a major part of their life in and out of the hospital, trying to find a treatment that keeps them in remission while managing the side effects. Receiving this diagnosis is life-changing. It can take the breath out of any parent or child who finds themselves in this situation. Our goal at NSF is to meet each family and child in these tough times and lift each one up as best we can by providing financial and emotional support to help them weather the times to better health, acceptance, and adjustment.
Join Us: Through our patient programs, we are committed to being a light to young warriors. We are a community of young warriors and families facing something we could never have imagined. TOGETHER, we are making an impact. Thank you to all of the beautiful people, businesses and organizations who make this possible. You are changing the world. ❤️
Our Work: NSF offers eight programs to uphold our mission and support children diagnosed with this disease and their families. Those programs include:
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Backpacks of Hope - A backpack of comfort items and medical supplies provided to newly diagnosed patients or those who have been battling in this fight without support (each valued at over $300).
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Finding Health Series - An ongoing series offering content, education and wellness segments, sessions and seminars on topics related to the NS journey.
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NSF’s Peer Team - A group of older teens and young adults with NS who support younger patients in their journey.
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Thermometer Program - A hospital-grade thermometer provided to patient families ($300+ value).
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Camp NSF - An annual camp, 100% free, for patients, siblings & families that takes place in Livermore, CA.
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Direct Patient Grants - Support for costs related to caring for a child with NS.
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Little Angels - An unsolicited care package program for young warriors.
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Podcast - Inspirational and authentic stories of warriors living with Nephrotic Syndrome.
Thank you for choosing to be the light for those battling
Nephrotic Syndrome.
Learn more by visiting our website: www.nephroticsyndromefoundation.org
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